I didn’t mean to wake him up.
We found out three weeks ago that my 87 year old Dad had Leukemia. He chose no treatment, because it would only extend his life by about three months. In the days following the diagnosis, his health declined a lot faster than anyone expected. Yesterday was the last day he was able to make sentences and make conversation with us. The cause is a combination of health and medicine. His body no longer makes enough red blood cells that help him do things like think, converse, and fight infection; because of this he has become confused from oxygen deprivation. Additionally, scar tissue on his arm would break open, bleed, and not clot up. The oxygen tube – something I knew so well from my mother in law’s final days – gave him some air to make up for the deficit, but not nearly enough.
The second part of the combination was for the pain he’s felt for months; Dad was given an ample amount of methadone and morphine.
Today he struggled several times to get up. His breathing was labored. His strength seemed to be summoned from beyond what his tired physical body could make. Occasionally he would hold his cupped weathered hands to the ceiling and open his eyes briefly. He didn’t make any direct responses to people, and his actions were merely answers to the secret directives that were locked in his brain. At one point he leaned his head on his grandson and stared into space. I rubbed his shoulders, feeling the soft skin move and stretch under my fingertips. I would rub his temples and watch him fall back asleep. At times he wanted to hold our hands, which we did happily. By this point his communication with us was more physical than anything – my Mom, and us kids, had finally taken on the the parenting task for him that he had shouldered for all of us.
We cared for him because he had cared for his family.
The evening went on like this – many attempts to get up or become more comfortable. We did what we could by trying to decipher his unspoken messages and tempering them with the need to keep him safe and comfortable. The fact that my 86 year old mother had been doing this for him prior to hospice care is absolutely astounding. But I’ve known all my life that she is determined and independant. When she asked us kids for help – which she rarely did – we knew she needed it. But tonight I watched her talk gently with my Dad – changing out dressings and assuring him that he was okay – and that we all loved him. My Dad seemed to know that the woman he met 70 years ago was there to help him. And my Mom would speak directly to the simple child’s heart he now shared with the world – simple, kind, unhindered by adulthood. In his room she was strong; outside of the room she was exhausted. A hospice nurse arrived about two hours after Jack and I arrived; by that time my Dad had been given some morphine and was resting peacefully again. As I went to say goodbye, I put my right hand on his shoulder whispered “I love you” in his ear.
My Dad twitched, opened his eyes, and looked at me squarely with surprise.
“Whoa!” I said quietly. “Sorry I didn’t mean to wake you up.”
He grabbed my left hand while still looking at me. I stroked his temple and kissed his forehead – once again saying I love you to him.
“You’re safe and you can rest. There are lots of people here for you, okay?”
He nodded to me while still looking in my eyes. Then he put my hand in between both of his, and patted it gently. After a day of little-to-no communication, my Dad had just acknowledged my love for him directly with as much warmth as I have ever seen. I cried as I was leaving the room.
While I never meant to wake him up, I’m damn happy I did.